Tuesday, September 13, 2011

Trevor's Cystic Fibrosis Clinic Visit

Trevor had a decent CF Clinic visit today. We had not been there since March, we normally go every 3 months.  He had only gained 10 ounces and 1/2 inch in height, but I am happy with that! He didn't break any records on his pulmonary function tests, but they were good also and his oxygen level was 99%!!! I am very hopeful that he will be a part of the vertex studies soon! The vertex drugs could cure the genetic defect causing CF. Very positive! He will go back in November for a CF related diabetes test and an ultrasound on his belly. Trevor's belly ultrasound is scheduled for 7:30 on November 23rd and he will also have his glucose test at 8:30 that day.

Monday, September 12, 2011

Trevor ~ Football 2011




Trevor had his first football game over the weekend! The team did great and won the game! Trevor even recovered a fumble! He is going to the Cystic Fibrosis clinic today for a checkup. Hope all goes well. It has been about 4 months since his last checkup, so hoping that he has gained some weight. He is playing soccer and football right now, so there is a lot of running and exercises. Hope he hasn't burned off all of his weight. He has to go in November for the CF related diabetes test. He hasn't had any problems, but since he turned 10 it is a normal test that they perform on CF kids. Today is just a checkup to find out his height and weight and PFT's (pulmonary function tests). They will probably make him spit up some mucus to analyze. He is just happy that he is not getting blood tests today! Good luck Trev!

Wednesday, August 17, 2011

Tuesday, August 9, 2011

Trevor turned 10 years old!

Trevor hit his milestone 10th birthday on July 23rd! Now he has to take two giant CF Source vitamins and he has to go in to clinic for a diabetes test in November along with his normal blood tests and x-rays. His normal CF checkup is coming up on September 12th. Hoping his pulmonary function tests (PFT's) will be great. Also hoping his weight and growth is good.  His team won their championship in baseball and he has already started football this year. I think he is a receiver. School starts on August 17th and he is going to be in 5th grade! He is growing up very fast and kicking CF's butt everyday!!!

Trevor and his friends on his 10th birthday.



Monday, August 8, 2011

TRISTAN.....BASEBALL 2011






Tristan's team finished 11-2 in regular season! He pitched and played 3rd, short stop and first base! He also had some great hits this year! Great job team!

Trevor's THREE-PETE Baseball Championship 2011!





Trevor's baseball team won the championship this year! This is Trevor's 3rd championship in a row! He pitched and played 2nd base! He also hit two home runs this year! It was a great team effort by all the kids! WAY TO GO!!!!