Common Misconceptions about Cystic Fibrosis

Are CF patients athletic???

They must be more vigilant about dehydration, over exertion and heat exhaustion, but cystic fibrosis sufferers are encouraged to participate in aerobic exercise. It helps build their breathing capacity and improves their ability to battle the disease. Trevor plays baseball, basketball, and soccer. He plans to play football next year! He loves to swim and jump on the trampoline also.

Is a diet of fatty foods unhealthy for CF patients???

Seeing someone feast on fatty foods may seem unhealthy and even counter intuitive, but that is just what the doctor ordered for CF patients. They need a high-calorie, high-fat diet to maintain a healthy body weight. We let Trevor eat whatever he wants to eat, encouraging him to eat as many calories per day as possible since he does not absorb his food like ordinary 9 year old boys.

Is it is Easy to Spot Someone with Cystic Fibrosis???

There is no such thing as a typical CF patient. The disease affects people of different racial backgrounds in a range of ages. Outward symptoms, like coughing, may or may not be present since the impact of the illness varies and people respond differently to treatment. Plus, many CF symptoms are also common in other conditions like asthma or Crohn's disease.

 CF Patients should be Home Schooled???

Again, the disease impacts patients differently, but most can successfully attend school with their peers. Absences due to frequent doctor appointments, illnesses and hospital stays can present a challenge, but CF patients are used to facing challenges. I think kids in general need social interaction. It is very important for kids to remain in the mainstream if at all possible! Trevor likes school and he gets to see his friends.


Can coughing Cystic Fibrosis Sufferers Spread the Disease to Healthy People???

Cystic fibrosis is not contagious; it is genetic. Coughing is usually a normal part of patients' breathing process, not a cold or flu symptom. Unlike most people, cystic fibrosis patients rigorously practice good coughing etiquette and hygiene. Other people are more likely to contract a contagious illness from a non- CF patient that does not shield others from his or her coughs. I worry much more about others without CF spreading germs to Trevor.

My CF Warrior, Trevor

Does CF affect your learning capability?

Absolutely NOT!  My nine year old son Trevor is in the 4th grade and is an honor roll student.  He excels in math! There is nothing that CF'ers can't do. They face extraordinary challenges, but because of that, they are stronger, more determined and braver individuals!!!

http://www.associatedcontent.com/article/1107788/cystic_fibrosis_or_cystic_fibrois_common.html?cat=68