We went for Trevor's 3 month check up on November 15th at the Cystic Fibrosis Clinic at Children's Mercy Hospital. He had only gained a couple of ounces in weight which is not a big concern since he gained 4 pounds in the previous 3 months. He had however, grown an inch in height!
He broke his all time record AGAIN on his PFT's (pulmonary function tests). He went from 186 to 190! Oxygen level at 99%. They did a new type of test to measure the air capacity in his lungs also. He was in a closed, see through chamber and they told him to breathe in and out regularly and then his air would be cut off for one breath in and out. I think it scared him just a bit, but he did fine and I think the results were good.
We talked about the vest and Trevor told Dr. Black that he was doing the vest 3 days a week. He agreed to up the usage of his vest to 5 days, with a little coaxing from Dr. Black.
We also talked about using the 7% hypersal solution. Trevor hated it and refused to use it because it was so harsh. The nurse practitioner suggested that we try the 3% hypersal instead. She also said there was a new concentrated version of albuterol that could be added directly to the hypersal in the nebulizer, to save time, so that two separate treatments were not necessary!
He ended the appointment with a flu shot, but it didn't phase him a bit.....didn't even flinch!! What a trooper~
He is still taking the azithromycin ( one pill, 3 days a week), Creon 24 ( around 15 capsules a day), CF source vitamins (one soft gel a day) and pericatin (two pills a day).
They said when he turns 10 that he has to have an abdominal ultrasound and a glucose tolerance test. He also has to start taking 2 of the CF source soft gels a day instead of the one he is taking now.
All in all it was a good appointment. Trevor was healthy! We are hoping for good sputum results as well. We should know the results on Friday.
No comments:
Post a Comment