Wednesday, March 23, 2011

Trevor's CF Clinic VISIT on 3/14/11

Trevor had another outstanding appointment on March 14th. He again broke his PFT all time record. Had normal flora on his blood work. Had a great chest x-ray and gained 2 pounds and grew in height as well!
I think the staff in the Cystic Fibrosis Clinic don't know what to think of Trevor or even what course of treatment to take with Trevor. He is definitely not a normal CF'r. I struggle with the fact that they want him to take so much medicine when he is not even sick.... Yes, I know all about the so called "PREVENTATIVE",  but is that in the best interest of Trevor. I am not sure. Canada doesn't provide this preventative care. Is it just that doctors and insurance companies want more money??? I don't know, but I am just going to continue doing what I feel is best for Trevor....after all....everyone who has CF is an individual with individual symptoms and need to be treated as such.  I am so happy for his good appointment and we have decided not to add pulmozyme at this point. Praying the drugs in trials will be the answer to all of our prayers....a CURE AT LAST!!!!

Sunday, March 13, 2011


Me and my good friend Tammy who helps me fundraise for Cystic Fibrosis. Here I am sporting my purple rose shirt and purple jewelry to raise awareness for CF!

Friday, March 4, 2011

Trevor 2011

Please take a moment to view my CF awareness video about our fantastic son, Trevor. Help Trevor and thousands of others make CF stand for CURE FOUND!

Logon to to join our walk team or make a amount is too small. Please help us fund a cure!