So yesterday was quite an experience at the KU Cancer Center. We arrived at around 9:10 am. Checked in and waited a few minutes for my appointment. The breast surgeon examined me. Explained a few things about the biopsy and then I was taken across the hall for the procedure. Jason was told to wait in the waiting area and I had to put my personal things in a locker and wait for my name to be called. They came to get me and asked me some more questions. Put a hospital band on my arm and then I was taken to the room where they do the biopsies. There was a metal table that looked like it was suspended in air. LOL The nurse asked me to lay with my stomach down and then she intended to compress my right breast. I immediately freaked a bit because I am very claustrophobic. So.... I was then taken back to the nurses room and the Dr. prescribed some Ativan to calm me down so I could make it through the procedure. They waited about 20 minutes and I was taken back to the biopsy room. I was relaxed enough at that point that everything went fine! Even the Dr. said I did a good job! LOL They also inserted a chip to mark the spot of the biopsy. They did a followup mammagram to make sure the chip was in place... OUCH!! Now just waiting for the results, but we probably won't know anything until Monday or Tuesday. I am thankful the procedure is done....and I am hoping for great results! I forgot to mention that all of the people I dealt with at KU were the nicest and most caring people. I really felt like I was in good hands!
Saturday, September 24, 2011
Friday, September 23, 2011
On September 29th I am going for a consultation and biopsy with a breast surgeon at KU Cancer Center. They called yesterday and asked me a lot of questions about my current health and my family history. Since my mother is gone....I really don't have much information on my family history, other than the fact that all of her side of the family died from cancer. I am having a stereotactic biopsy. My diagnostic mammagram showed microcalcifications in my right breast only, which put me at a Birad 4 (suspicious). The only way to know for sure whether or not it is cancer is to have this biopsy. I am ready to get the test over with and get the results.
Wednesday, September 21, 2011
I just received an email from the nurse practioner at Children's Mercy Hospital's CF Clinic. She said that Trevor's last culture came back with normal flora! NO BACTERIA! I am so happy and blessed that he has done so well. Hoping and praying that he continues to. Also hoping he is eligible for the vertex studies soon. Counting our blessings!!!
Tuesday, September 20, 2011
Well....KU Cancer Center called yesterday and my consultation for the breast biopsy is scheduled for September 29th. It is always nice to get immediate answers, but it is not realistic, so I will try to wait patiently and hope for the best results. I keep telling myself that most microcalcifications come back benign (80%). Most are not cancer. I have to think positively. :)
Monday, September 19, 2011
Anyone who knows me, knows that I am not the most patient person. Oh I have my moments. I always seem to have patience with my kiddos, but now I am sitting hear waiting for an appointment day and time to consult a cancer doctor about a breast biopsy. I have read so much information on the internet about the microcalcifications that the original mammagram showed last week as well as the diagnostic mammagram. I found out that more than half of the breast cancer cases are diagnosed with microcalcifications and having them only in one breast increases your chances of it being cancerous. It is definately hard to wait to know one way or another. Still very optimistic as most biopsies come back benign. It is the not knowing that is getting to me. The nurse from my doctor's office said that the KU cancer docs want to look at the results and decide how urgent my case is. So if I judge the waiting by that....maybe my case is not so urgent and hopefully everything will turn out fine.
Friday, September 16, 2011
I went for a diagnostic mammagram this morning and a possible ultrasound. They did the diagnostic mammagram and she took the results to the doc while I sat in the cold room all alone and waited. She finally came back and said that they didn't want to do the ultrasound. I was suddenly relieved. Little did I know, she wasn't finished. The doctor reccomended that I have a biopsy on my right breast. Still very positive though and hoping there is nothing cancerous. I am waiting for a call back from KU Cancer Center, where I will have my biopsy done. Hopefully soon. Did I mention that they squeezed the heck out of my boob today, I was almost in tears....it hurt so bad. Now it is done and now more waiting for results.
Thursday, September 15, 2011
Ever since I was little I remember my mom telling me about cancer running in her family. Her mom died from stomach cancer and her 4 brothers and her sister also died from cancer. My mom was the youngest of 6 kids. She was diagnosed with breast cancer at 62. She took radiation treatments and removed the bad tissue. (no mastectomy) They said the cancer was gone. Then at 70, she was diagnosed with lung cancer. My mother had been a heavy smoker since she was in her 30's. She started smoking after having kids. The type of lung cancer she had was agressive and was a direct result of smoking. She died a year later.
Tuesday, September 13, 2011
This is the trial that Trevor may be eligible for soon!
Combined VX-770 & VX-809 Clinical Trial FAQs - CF Foundation
Combined VX-770 & VX-809 Clinical Trial FAQs - CF Foundation
Trevor had a decent CF Clinic visit today. We had not been there since March, we normally go every 3 months. He had only gained 10 ounces and 1/2 inch in height, but I am happy with that! He didn't break any records on his pulmonary function tests, but they were good also and his oxygen level was 99%!!! I am very hopeful that he will be a part of the vertex studies soon! The vertex drugs could cure the genetic defect causing CF. Very positive! He will go back in November for a CF related diabetes test and an ultrasound on his belly. Trevor's belly ultrasound is scheduled for 7:30 on November 23rd and he will also have his glucose test at 8:30 that day.
Monday, September 12, 2011
Trevor had his first football game over the weekend! The team did great and won the game! Trevor even recovered a fumble! He is going to the Cystic Fibrosis clinic today for a checkup. Hope all goes well. It has been about 4 months since his last checkup, so hoping that he has gained some weight. He is playing soccer and football right now, so there is a lot of running and exercises. Hope he hasn't burned off all of his weight. He has to go in November for the CF related diabetes test. He hasn't had any problems, but since he turned 10 it is a normal test that they perform on CF kids. Today is just a checkup to find out his height and weight and PFT's (pulmonary function tests). They will probably make him spit up some mucus to analyze. He is just happy that he is not getting blood tests today! Good luck Trev!