Beginning my 46th year!!!

There is nothing like turning another year older and starting a brand New Year.....Happy New Year to everyone.....may this be the best year yet! GOD BLESS!

MAGGIE AND MOLLY

Me and the boys

Jason and the boys at Grandmas and Grandpas

Our new puppies.....Molly and Maggie

KUDOS TO TRISTAN AND TREVOR!

I AM VERY PROUD OF TRISTAN FOR BEING SELECTED FOR THE "A" TEAM FOR SCIENCE OLYMPIAD. HE HAS REALLY WORKED HARD!

I AM ALSO PROUD OF TREVOR FOR BEING SELECTED AS STUDENT OF THE MONTH FOR FRIENDSHIP!

GREAT JOB BOYS!

COUNT YOUR BLESSINGS....

ENJOY EACH DAY AS A GIFT...FOR TOMORROW IS NOT PROMISED.

FROM THE FRAZIERS..........

MERRY CHRISTMAS

AND

HAPPY NEW YEAR!

IT IS BEGINNING TO LOOK A LOT LIKE CHRISTMAS!



Santa's Forest Tree

  Snowman Tree





Our Fireplace

The First Snow

New Meds for Trevor

Well,  three weeks after our CF Clinic visit....we now have Trevor's new medicine. He will now be on a concentrated dose of Albuterol along with the 3% hypersal. This hypersal replaces the 7% hypersal that Trevor did not tolerate very well. The other advantage is that the 3% hypersal can be mixed directly with the concentrated albuterol which cuts down the amount of time needed for the treatment. Why did it take so long to get the new meds? When I originally took the prescriptions to our regular pharmacy......they delayed telling me that these prescriptions had to be filled at a "specialty pharmacy" according to our insurance company. So I had to call back the clinic....who in turn called the specialty pharmacy and from that point on it was just a waiting game. I hope the new meds go well...I will keep you informed. He is still taking his Creon 24 (3-4 with meals, and 2-3 with snacks ), periactin ( 2 a day to help him keep a healthy appetite), azithromycin ( 3 days a week to prevent lung inflammation ), and his CF Source multi vitamin. ( once a day ).

Our little first grade elf.....Trey

Trey's first grade program was last night....all the first graders did a wonderful job. Trey was an elf and was wearing a costume made by his Grandma Frankie. I thought it turned out super cute! They are growing up too fast. Won't be able to see many more of these little programs. :(

Merry Christmas to everyone!

Trevor's sputum results

We recieved good news this week......Trevor's sputum results were normal flora! NO BACTERIA! That is fantastic news and I can't think of anything to be more thankful for this Thanksgiving. SO MANY BLESSINGS for our family. SO VERY THANKFUL!

Happy Thanksgiving to everyone!!! :)


Gail ♥♥♥

UPDATE ON TREVOR

We went for Trevor's 3 month check up on November 15th at the Cystic Fibrosis Clinic at Children's Mercy Hospital.  He had only gained a couple of ounces in weight which is not a big concern since he gained 4 pounds in the previous 3 months. He had however, grown an inch in height!

He broke his all time record AGAIN on his PFT's (pulmonary function tests). He went from 186 to 190! Oxygen level at 99%. They did a new type of test to measure the air capacity in his lungs also. He was in a closed, see through chamber and they told him to breathe in and out regularly and then his air would be cut off for one breath in and out. I think it scared him just a bit, but he did fine and I think the results were good.

We talked about the vest and Trevor told Dr. Black that he was doing the vest 3 days a week. He agreed to up the usage of his vest to 5 days, with a little coaxing from Dr. Black.

We also talked about using the 7% hypersal solution. Trevor hated it and refused to use it because it was so harsh. The nurse practitioner suggested that we try the 3% hypersal instead. She also said there was a new concentrated version of albuterol that could be added directly to the hypersal in the nebulizer, to save time, so that two separate treatments were not necessary!

He ended the appointment with a flu shot, but it didn't phase him a bit.....didn't even flinch!! What a trooper~

He is still taking the azithromycin ( one pill, 3 days a week), Creon 24 ( around 15 capsules a day), CF source vitamins (one soft gel a day) and pericatin (two pills a day).

They said when he turns 10 that he has to have an abdominal ultrasound and a glucose tolerance test. He also has to start taking 2 of the CF source soft gels a day instead of the one he is taking now.

All in all it was a good appointment. Trevor was healthy! We are hoping for good sputum results as well. We should know the results on Friday.

The GREAT STRIDES KC walk to cure Cystic Fibrosis

This years Great Strides walk to cure Cystic Fibrosis will be held on May 14th 2011 at Theis Park.  For more information on this walk and how you can help Trevor and thousands of others with CF....please click on the following link.

http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=7235&idUser=163181

Diamond Rio - In God We Still Trust Music Video

IN HONOR OF ALL OUR VETERANS!

Trevor's nebulizer and vest

After almost 9 years....we had to get a new nebulizer for Trevor.   I am not complaining one bit. I am actually very thankful that we were able to keep the nebulizer that long. We didn't have to use it everyday...which was a blessing. Now he uses it with hyper sal and albuterol as needed.  

Trevor's new nebulizer

Trevor's vest

Trevor's vest we have had for approximately 4 years. I love it! He is not so keen on it though. He says it takes too long, but he compromises and does it because I have told him that it can help keep his lungs healthy. Now I just try to find something to entertain him while he is doing it. He told me the other day that it is tough to have a disease. I said I know Trevor, but you are tougher!!!

Meet Joel a brave little boy with CF!!

http://www.onetruemedia.com/shared?p=ac0d00288b6c7b02986f84&skin_id=1704&utm_source=otm&utm_medium=text_url


Please help us make CF stand for CURE FOUND!

Trevor and his vest

Trevor doing his vest while playing video games





This is one of the few ways Trevor will do his vest without much of a fight. LOL At least it entertains him during the 30 minute treatment!

One of my favorite pics of all my boys!!!

Trevor, Jason, Trey, and Tristan

This picture was take the day Trey was born.  August 11, 2003. I just love it. It is one of my favorite pics of all my boys!

Trevor's CF Clinic visit rescheduled....

I rescheduled Trevor's CF Clinic visit that was originally scheduled for November 1st. Now he is scheduled for his 3 month check up on November 15th. He is a little worried about his weight. I think it stresses him because he knows they will weigh him when we go for the check up. After 9 years of check ups.....he is acutely aware of everything they do and everything they expect. With that being said......just because they expect it, doesn't mean it is possible. He tells me that he is trying so hard to gain weight....I have to choke back the tears and keep a smile on my face.  He is trying! He is trying so hard, but the grim reality is that CF is a battle.  He has to keep on fighting against this stupid disease every single day. This disease that makes it impossible for him to absorb food like any other normal 9 year old boy. That keeps him from digesting his food properly which sometimes leads to extremely painful stomach aches. I just tell him that he is in control,  and he has to keep on trying and fighting this everyday.  What is crazy is that Trevor is one of the lucky ones with CF.....if anyone could be lucky with this devastating disease. He has only had Pseudomonas (bacterial infection) one time and has never tested positive for it again. He has only had to MSSA infections (also bacterial infections)......no MRSA! We have been so blessed with the health of his lungs....I guess we shouldn't even complain, but I want a cure.  Currently, Trevor is taking Creon 20 (15 capsules per day for digestion) , Azithromycin ( 1 tablet 3 days a week as an anti inflammatory for his lungs), Periactin ( 2 tablets per day to increase appetite), Source CF soft gels ( 1 capsule per day, multivitamin), zantac as needed, albuterol and hypersal as needed and this list is just a drop in the bucket of what an average CF'r takes. At any rate....I am hoping for a great report when we go on the 15th for his check up!

THE AGONY OF DEFEAT.....

TITANS 2010 2ND PLACE



TRISTAN AND I, BEFORE THE GAME


IT WAS A BEAUTIFUL DAY FOR A CHAMPIONSHIP FOOTBALL GAME. FOR SOME REASON, IT JUST WASN'T OUR DAY TO WIN. THE TITANS SHOULD BE PROUD OF WHAT THEY ACCOMPLISHED THIS SEASON THOUGH! THEY FINISHED 2ND AND THEIR TEAM WON THE SPORTSMANSHIP AWARD FOR THE LEAGUE. THEY ALL WORKED HARD AND SHOULD BE CONGRATULATED FOR THEIR EFFORT!

HALLOWEEN NIGHT 2010

TREVOR, TREY, & TRISTAN

MY BOYS

SWEET VICTORY FOR TRISTAN'S FOOTBALL TEAM!

LATHROP TITANS 2010

TRISTAN'S FOOTBALL TEAM SHUT OUT EXCELSIOR BLACK YESTERDAY IN THE SEMIFINALS OF THE SHOW ME YOUTH FOOTBALL LEAGUE. THEY PLAYED OFF AND ON IN THE RAIN, BUT DIDN'T LET THAT STOP THEM! THEY PLAYED THEIR HEARTS OUT AND SHOWED UP TO WIN!!! TRISTAN MADE SEVERAL TACKLES AND ALMOST GOT AN INTERCEPTION! THEY WILL BE PLAYING IN THE CHAMPIONSHIP GAME ON SATURDAY IN EXCELSIOR SPRINGS!!! GOOD LUCK TO THE LATHROP TITANS!!!!!

Be not afraid of greatness: some are born great, some achieve greatness, and some have greatness thrust upon them.

William Shakespeare

PUMPKIN CARVING............

EVERY YEAR WE CARVE PUMPKINS! HERE ARE A FEW PICS FROM THE PUMPKINS THAT THE BOYS CARVED LAST NIGHT!!

TREY AND HIS FRANKENSTEIN PUMPKIN

TREY'S PUMPKIN

TREVOR AND HIS GRIM REAPER PUMPKIN

TREVOR'S PUMPKIN

TRISTAN AND HIS HAUNTED HOUSE PUMPKIN

TRISTAN'S PUMPKIN

What it feels like to have Cystic Fibrosis

Miranda Hutson

photo courtesy Miranda Hutson

SHARE A SMILE

A SMILE IS ONE OF THE EASIEST WAYS TO BE NICE! TAKE A MOMENT AND SHARE A SMILE WITH SOMEONE, YOU MIGHT BE SURPRISED AT WHAT THE OUTCOME WILL BE! IT DOESN'T TAKE MUCH TIME AND IT DOESN'T COST ANY MONEY.  IT TAKES FEWER MUSCLES TO SMILE THAN TO FROWN! SO TURN YOUR FROWN UPSIDE DOWN AND SMILE A WHILE!

MY SMILE TO ALL OF YOU!

CRAZY ME!

Man I love this time of year! The only thing I can really complain about is that the time is passing way too quickly. I am constantly amazed that my sons are already 11, 9, and 7 years old. It seems like just yesterday that my oldest started kindergarten and now he is in the 6th grade. It doesn't seem possible. No more diapers, bottles, pacifiers. Now it is basketball shoes, football and soccer cleats. Bats, gloves and balls! Keeping up with equipment,  assignments at school, and very hectic schedules! I am an expert at putting pads in football pants, washing uniforms, and I am the head chearleader at every game!!! Trevor goes back to the CF clinic on November 1st and I am hoping and praying for a good checkup! Hoping he has gained weight! Trying to teach all my sons to be respectful, driven, and genuinely good people. I am sure proud of the young men they are becoming.....just wish they would slow down a little. Is it crazy that we are even talking about colleges at this point??? Driving cars??? LOL It won't be long I know. The time is going by in fast forward for me. Trying to enjoy every precious moment of their childhood...hoping they are enjoying it as well!

CYSTIC FIBROSIS AWARENESS

THE HARSH REALITY OF CF

PLEASE CLICK ON THE ABOVE LINK TO LEARN MORE ABOUT CYSTIC FIBROSIS!

TRISTAN AND TREVOR FINISHED THE FIRST QUARTER WITH ALL "A"s

Tristan and Trevor both ended the quarter with all "A"s!  Both of their cumulative math and science grade averages were over 100%!!! Fantastic job boys! Keep up the hard work. It will definitely pay off some day!! I am very proud of both of you!

TREY'S FIRST SPELLING TEST!

I am so proud of Trey for making 100% on his first spelling test! He is in first grade this year and doing well. He doesn't get letter grades on his report card, but I am pretty sure he would have "A"s if he did. Keep up the good work Trey. I am very proud that you are working so hard!

Vertex Begins Clinical Trial to Evaluate Combination of VX-770 and VX-809 - CFF

Check out this new information on the Vertex Drug Trials.....

http://www.cff.org/aboutCFFoundation/NewsEvents/10-18-Vertex-Starts-VX-770-VX-809-Clinical-Trial.cfm


Information courtesy of http://www.cff.org/

SUPER BUGS LURKING IN HOSPITALS~

IF TODAY WAS YOUR LAST DAY???

If today was your last day, would you make it worthwhile. Would you do something tremendous and extraordinary? We all need to live our lives as if it were the last day...appreciating every moment....even the ones that make you want to crawl under the covers and go back to bed.  It really is all good. The joy of being alive and spending time with family and friends is such a gift to behold. Don't waste a single moment! Tomorrow is not promised, so live today as if it were your last and make it spectacular!

Some pics from Trevor's 4th grade trip to the Living History Festival

Football boys....Tristan's friends and teamates

These pictures were taken at the 6th grade fieldtrip to the Living History Festival. Their football team finished the regular season 4-2 and are headed for the playoffs~!

Tristan is #22